CureDRPLA Global Patient Registry

01/02/2024
25/03/2026
Data source
Human
Disease registry
Other
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Record completeness

Administrative details

Data source ID

46586

Name of data source

CureDRPLA Global Patient Registry

Data source acronym

CureDRPLA Global Patient Registry - DRPLA

Data holder

Data source type

Disease registry
Other

Data source type, other

Exposure registry

Main financial support

Funding by own institution

Care setting

Other

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Description of the qualification

undefined

Data source website

Contact details

Data source regions and languages

Data source countries

Canada
Italy
Japan
Korea, Republic of
Netherlands
New Zealand
United Kingdom
United States

Data source languages

English
French
Italian
Japanese
Korean
Portuguese
Data source establishment

Data source established

Data source time span

First collection: 15/06/2021
The date when data started to be collected or extracted.

Publications

Data source publications