European Network and Registry for Homocystinurias and Methylation Defects - E-HOD

First published 01/02/2024

Last updated 17/10/2024

Data source

Human

Disease registry

Other

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Administrative details

PURI: https://redirect.ema.europa.eu/resource/46314

Data source ID: 46314

Name of data source: European Network and Registry for Homocystinurias and Methylation Defects - E-HOD

Data source acronym: E-HOD

Data holder: European network and registry for Homocystinurias and methylation Defects (E-HOD)

Data source type: Disease registry
Other

Data source type, other: Post-authorisation safety studies (PASS) database

Main financial support: European public funding

Care setting: Hospital inpatient care
Hospital outpatient care
Primary care – specialist level (e.g. paediatricians)
Secondary care – specialist level (ambulatory)

Data source qualification If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.: No

Data source website: https://www.ehod-registry.org/

Contact details

Stefan Kölker

Main

stefan.koelker@med.uni-heidelberg.de

Data source regions and languages

Data source countries: Austria
Belgium
Brazil
Colombia
Croatia
Czechia
Denmark
France
Germany
Greece
Hungary
Iran, Islamic Republic of
Ireland
Italy
Netherlands
Poland
Portugal
Spain
Switzerland
Taiwan
United Kingdom
United States

Data source languages: English

Data source establishment

Data source established: 15/06/2013

Data source time span: First collection: 26/07/2013
The date when data started to be collected or extracted.

Publications

Data source publications