The Swedish Multiple Sclerosis Registry

09/06/2026
09/06/2026
Data source
Human
Disease registry
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Record completeness

Administrative details

Data source ID

1000001023

Name of data source

The Swedish Multiple Sclerosis Registry

Data source acronym

SMSreg

Data holder

Data source type

Disease registry

Main financial support

National, regional, or municipal public funding

Care setting

Secondary care – specialist level (ambulatory)

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

Yes

Description of the qualification

SMSreg was part of the BigMSData Network (BMSD) receiving a Scientific Advice for performing PASS in 2021. We, SMSreg as part of BMSD, are presently (June 2026) at a late review stage to receive a Qualification Opinion for PASS.

Data source website

Contact details

Data source regions and languages

Data source countries

Sweden

Data source languages

Swedish

Data source regions

Blekinge län [SE-10]
Dalarnas län [SE-20]
Gävleborgs län [SE-21]
Gotlands län [SE-09]
Hallands län [SE-13]
Jämtlands län [SE-23]
Jönköpings län [SE-06]
Kalmar län [SE-08]
Kronobergs län [SE-07]
Norrbottens län [SE-25]
Örebro län [SE-18]
Östergötlands län [SE-05]
Skåne län [SE-12]
Södermanlands län [SE-04]
Stockholms län [SE-01]
Uppsala län [SE-03]
Värmlands län [SE-17]
Västerbottens län [SE-24]
Västernorrlands län [SE-22]
Västmanlands län [SE-19]
Västra Götalands län [SE-14]
Data source establishment

Data source established

Data source time span

First collection: 01/01/2001
The date when data started to be collected or extracted.

Publications

Data source publications