Portal da Atrofia Muscular Espinhal (Spinal Muscular Atrophy Portal)

04/03/2026
18/03/2026
Data source
Human
Disease registry
Drug registry
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Record completeness

Administrative details

Data source ID

1000000930

Name of data source

Portal da Atrofia Muscular Espinhal (Spinal Muscular Atrophy Portal)

Data source acronym

PAME

Data holder

Data source type

Disease registry
Drug registry

Main financial support

Funding by own institution

Care setting

Hospital outpatient care

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Description of the qualification

undefined

Contact details

Data source regions and languages

Data source countries

Portugal

Data source languages

Portuguese

Data source regions

Região Autónoma da Madeira
Região Autónoma dos Açores
Região Continental
Data source establishment

Data source established

Data source time span

First collection: 22/03/2019
The date when data started to be collected or extracted.