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An Open Label, Observational, Prospective Registry of Participants With Sickle Cell Disease (SCD) Treated With Oxbryta® (Voxelotor)® (Voxelotor)
United States
EU PAS number:
EUPAS1000000170
First published:
30/09/2024
07/04/2025
StudyFinalised
DARWIN EU® - Chondrosarcoma: patient demographics, treatments, and survival in the period 2010-2023
Finland
France
Netherlands
Spain
United Kingdom
EU PAS number:
EUPAS1000000162
First published:
16/05/2024
26/02/2025
StudyFinalised
Depicting real-life treatment journeys for patients affected with an immune-inflammatory condition and treated with methotrexate
France
EU PAS number:
EUPAS1000000159
First published:
17/05/2024
17/05/2024
StudyOngoing
Antiplatelet Therapy during the First Year after Acute Coronary Syndrome in a Contemporary Italian Community of over 5 Million Subjects
Italy
EU PAS number:
EUPAS1000000154
First published:
08/05/2024
08/05/2024
StudyFinalised
INvestigating SIGnificant Health TrendS in Growth Hormone Treatments Registry
First published:
13/05/2024
17/10/2024
Germany
Data source
Human
Disease registry
TREAT NL/BE registry (TREatment of Atopic eczema, the Netherlands and Belgium)
First published:
24/04/2024
17/10/2024
Belgium
Netherlands
Data source
Human
Disease registry
Comparative, Prospective Registry of Newly Initiated Therapies for Pulmonary Hypertension
First published:
22/04/2024
17/10/2024
Austria
Belgium
Germany
Hungary
Italy
Latvia
Lithuania
Netherlands
Poland
Switzerland
United Kingdom
Data source
Human
Disease registry
Register-based study on disease burden of bacterial meningitis, and long-term prognosis and resource use of invasive meningococcal disease in Finland (MEN00065)
Finland
EU PAS number:
EUPAS1000000081
First published:
28/05/2024
28/05/2024
StudyOngoing
European Sickle Cell Disease Cohort – Hydroxyurea – Extension study (ESCORT-HU Extension)
France
Germany
Greece
Italy
EU PAS number:
EUPAS1000000066
First published:
18/07/2024
18/07/2024
StudyOngoing
Association between exposure to GLP-1 receptor agonists and risk of suicide-related and self-harm-related events
United Kingdom
EU PAS number:
EUPAS1000000052
First published:
07/03/2024
15/04/2024
StudyFinalised
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HMA-EMA Catalogues of real-world data sources and studies

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