Network identification

PURI

https://redirect.ema.europa.eu/resource/25161

Network ID

25161

Network name and Acronym

European Registry of Psoriasis (Psonet)

Network countries

Austria
Czechia
Denmark
France
Germany
Italy
Lithuania
Netherlands
Portugal
Romania
Slovenia
Spain
Sweden
Switzerland
United Kingdom

Network website

ENCePP partner

Yes
Network description
Psonet is a network of population-based registries of systemic treatment for psoriasis in Europe. Registries at different stages of development are associated in Psonet to date in the following countries: Australia,Austria,Czech Republic,Slovenia,Denmark,France,Germany,Israel,Italy,Portugal,Romania,Spain,Sweden,Switzerland,The Netherlands,UK. An interest in collaborating has been also expressed by representatives of the Lithuanian registry,and both by a Tunisian and a Greek group.Criteria for merging data from the registries have been developed and rules for conducting combined analyses have been established. Deliverables of the Psonet collaboration would include (1) comparative data on treatment strategies for psoriasis in Europe,(2) rapid alerts on newly recognised unexpected events,(3) regular reports on specific issues concerning effectiveness and safety. Collaboration with rheumatologic registries has been envisaged. A link with EADV has been established.
Network details
Network primary therapeutic area:
Skin disorders
Network funding:
Pharmaceutical company and other private sector 
Other

Contact

Institutions that are part of this network