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OrphanDev
First published
06/05/2026
Last updated
06/05/2026
Network
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Network identification
Network description
Network details
Contact details
Institutions that are part of this network
Network identification
Network ID
1000000541
Network name and Acronym
OrphanDev
Network website
https://www.orphan-dev.org
Network countries
France
ENCePP partner
Yes
Network description
OrphanDev is a public-private network of expertise in the field of rare diseases. Labelled by F-CRIN, this initiative brings together around fifty stakeholders in the field of rare diseases, including academic, private, and civil society actors.
The development of the network stems from three main needs:
• The need for transversality: a space for dialogue and consultation to enhance complementarity and efficiency
• The need for greater integration between industrial and academic sectors by improving dialogue and processes: a public-private interface
• The need for supportive expertise to accelerate the availability of innovations for patients: removing administrative, regulatory, and legal barriers
Network details
Network primary therapeutic area:
Other
Network funding:
EU institutional research programme
Other public funding (e.g. hospital or university)
Contact details
Vincent Montero vincent.montero@inserm.fr
Main
vincent.montero@inserm.fr
Olivier Blin prof.olivier.blin@gmail.com
Alternate
prof.olivier.blin@gmail.com
Institutions that are part of this network
No information provided.
Data sources owned by the network
This Network does not have any data source registered in the catalogue
Studies conducted by the network
This Network does not have any Studies registered in the catalogue.
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