Institution identification

PURI

https://redirect.ema.europa.eu/resource/3331228

Institution ID

3331228

Institution full name and acronym

PedNet Haemophilia Research Foundation

Institution countries

Netherlands

Type of institution

Not-for-profit

Institution role

Researcher

Institution website

ENCePP partner

No
Institution description
The PEDiatric NETwork for haemophilia management (PedNet group) is a collaboration framework consisting of physicians who treat children with haemophilia and allied disorders. The group is used as a forum to:
- Exchange experiences on paediatric care of haemophilia
- Perform research in the field of haemophilia and related coagulation disorders
Institution details
Experience with collecting data directly from individual patients or respondents:
No
Interest in carrying out research that is funded by pharmaceutical companies:
No

Contact

Studies conducted by the institution