Institution identification

PURI

https://redirect.ema.europa.eu/resource/3331137

Institution ID

3331137

Institution full name and acronym

HARMONY Alliance

Institution countries

Austria
Belgium
Brazil
Canada
Czechia
Denmark
France
Germany
Greece
Italy
Netherlands
Poland
Qatar
Singapore
Spain
Sweden
Switzerland
United Kingdom
United Kingdom (Northern Ireland)

Type of institution

Patient organisation/association

Institution role

Data provider

Institution website

ENCePP partner

No
Institution description
The HARMONY Alliance is a European Public–Private Partnership for Big Data in Hematology. When we started in 2017, the hematology community was embarking on a journey towards embracing data sharing and recognizing the transformative power of big data. HARMONY set a crucial milestone when this endeavor was only starting. By laying the foundation for future collaborations, advancements, and discoveries that would incorporate state-of-the-art technologies in the field of hematology, we are making our contribution to improving the understanding and treatment of blood disorders.

Now, just almost seven years later with 128 partners from 28 countries, we have transformed both the sharing and use of data. We have developed the Big Data Platform with a data lake that has identified over 165,000 patient records. All data is protected using a unique anonymization and security process. In more than 30 research projects, groundbreaking research is being carried out with the help of advanced customized data analytic services, including AI modeling.
Institution details
Experience with collecting data directly from individual patients or respondents:
Yes
Interest in carrying out research that is funded by pharmaceutical companies:
No

Contact