Clinical Data Science (IKNL), Netherlands Comprehensive Cancer Organisation

The main goal of the Netherlands Comprehensive Cancer Organisation (IKNL) is to reduce the impact of cancer,from the personal to the societal level. With the Netherlands Cancer Registry (NCR) as its core activity,IKNL enables health care professionals,researchers,policy makers and others to reflect on cancer and on palliative care. Together with care professionals,researchers,patients,and policy makers we translate data into valuable insights to improve oncological and palliative care. The NCR compiles clinical data of all individuals newly diagnosed with cancer in the Netherlands. Cancer registration clerks register newly diagnosed cancer patients since 1989 on a national basis. Over the past 30 years,this registry has provided clinicians and researchers with a wealth of clinical data (e.g. stage and primary treatment) on cancer patients of all ages.