Institution identification

Institution ID

1000000873

Institution full name and acronym

MSBase Foundation Limited

Institution countries

Australia

Type of institution

Not-for-profit

Institution role

Data holder
Researcher

Institution website

ENCePP partner

Yes
Institution description
The MSBase Foundation is an independent not-for-profit organisation that owns and operates the MSBase Registry - a unique international collaborative registry designed for clinicians working in the field of multiple sclerosis (MS) and other neuroimmunological diseases (NIDs), to collect, track, share and evaluate patient outcomes data.

The MSBase Foundation supports Registry members by providing freely available data-entry tools and scientific support.

The Registry commenced in 2004 and has accumulated over 122,000 patient records from 45 countries, and is the largest organised global repository of longitudinal, 'real-world' MS patient data.

The Registry aims to advance collaborative epidemiological and outcomes research to better understand MS and other NIDs, and to improve healthcare for those living with MS or other NIDs.
A global Board of Directors and a Scientific Leadership Group (SLG) govern The MSBase Foundation and provide strategic direction to the operations and scientific areas of the Foundation respectively. The Operations Team is responsible for the day-to-day maintenance and management of the Registry.
Institution details
Experience with collecting data directly from individual patients or respondents:
Yes
Interest in carrying out research that is funded by pharmaceutical companies:
Yes

Contact