Institution identification

Institution ID

1000000119

Institution full name and acronym

European Society for Immunodeficiencies (ESID)

Institution countries

Netherlands

Type of institution

Not-for-profit

Institution role

Data holder
Data provider
Researcher

Institution website

ENCePP partner

No
Institution description
The European Society for Immunodeficiencies (ESID) is a not-for-profit association that was created in 1994. ESID has been striving to improve the knowledge in the field of Primary Immunodeficiency/Inborn Errors of Immunity (PID/IEI) by encouraging research, developing educational programs and fostering cooperation among all those involved in the diagnosis, treatment and management of these diseases.

ESID is organized in seven (7) working parties: Inborn Errors, Clinical, Education, Genetics, Registry, ESID Juniors, PID Care in Development. In order to perform its mission, ESID organizes several activities such as:

ESID Biennial Congress
ESID Focused Meetings
ESID Online Education
ESID Summer School
Endorsed activities
Awards and Grants
ESID Registry
ESID Guidelines

Mission:
ESID believes that every child, adolescent and adult born with a defective immune system has the right to benefit from both clinical and scientific knowledge.

Therefore, our mission is to enable patients with primary immunodeficiency diseases to live their lives to its full potential by improving awareness, diagnosis, treatment, education and understanding of these diseases.

As the leading society in the field, ESID is committed to promote collaboration between healthcare professionals, patient organizations, industry and governmental bodies and to foster education and research.
Institution details
Experience with collecting data directly from individual patients or respondents:
Yes
Interest in carrying out research that is funded by pharmaceutical companies:
Yes

Contact