Administrative details

PURI

https://redirect.ema.europa.eu/resource/42196

Data source ID

42196

Name of data source

Longitudinal Data Collection from Patients with Spinal Muscular Atrophy (SMArtCARE)

Data source acronym

SMArtCARE

Data holder

Data source type

Disease registry

Main financial support

Funding from industry or contract research

Care setting

Hospital inpatient care
Hospital outpatient care
Primary care – GP, community pharmacist level
Primary care – specialist level (e.g. paediatricians)
Secondary care – specialist level (ambulatory)

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Data source website

Contact details

Data source regions and languages

Data source countries

Austria
Germany
Switzerland

Data source languages

English
German
Data source establishment

Data source established

Data source time span

First collection: 15/06/2017
The date when data started to be collected or extracted.

Publications

Data source publications

Studies

List of studies that have been conducted using the data source