Administrative details

Data source ID

30505

Name of data source

REGISTRY: a study by the European Huntington’s Disease Network

Data source acronym

EHDN - REGISTRY

Data holder

Data source type

Biobank
Disease registry

Main financial support

Funds from patients organisations, charity and foundations

Care setting

Hospital inpatient care
Hospital outpatient care
Other
Secondary care – specialist level (ambulatory)

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Data source website

Contact details

Data source regions and languages

Data source countries

Austria
Belgium
Czechia
Denmark
Finland
France
Germany
Italy
Netherlands
Norway
Poland
Portugal
Russian Federation
Slovenia
Sweden
Switzerland
United Kingdom

Data source languages

English
Data source establishment

Data source established

Data source time span

First collection: 17/08/2004
The date when data started to be collected or extracted.

Last collection: 15/08/2017
If data collection in the data source has ceased, the date new records last entered the data source.

Publications

Data source publications

Studies

List of studies that have been conducted using the data source