Administrative details

PURI

https://redirect.ema.europa.eu/resource/18559

Data source ID

18559

Name of data source

European Registry of Patients with McArdle disease or other rare form of muscle Glycogenoses

Data source acronym

EUROMAC

Data holder

Data source type

Disease registry

Main financial support

Other

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Data source website

Contact details

Data source regions and languages

Data source countries

Denmark
France
Germany
Greece
Italy
Netherlands
Portugal
Spain
Türkiye
United Kingdom

Data source languages

English
Data source establishment

Data source time span

First collection: 01/09/2015
The date when data started to be collected or extracted.