Administrative details

PURI

https://redirect.ema.europa.eu/resource/1111220

Data source ID

1111220

Name of data source

European Rare Diseases Research Alliance Data Hub

Data source acronym

ERDERA-DH

Data holder

Data source type

Hospital outpatient visit records
Hospital inpatient records
Other

Data source type, other

The Data Hub is sourced from partner resource's metadata (now: EJP RD, future: ERDERA and via a governance model), encompassing disease registries that collect common data elements, cell and sample resources, and public data and knowledge resources.

Main financial support

European public funding
Other

Care setting

Hospital outpatient care
Hospital inpatient care

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Data source website

Contact details

Data source regions and languages

Data source countries

Austria
Belgium
Bulgaria
Croatia
Cyprus
Czechia
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Latvia
Liechtenstein
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
United Kingdom
Data source establishment

Data source established

Data source time span

First collection: 15/06/2021
The date when data started to be collected or extracted.

Publications

Data source publications