French National Registry of Rare Diseases (Banque Nationale de Données Maladies Rares)

First published 28/09/2022

Last updated 30/05/2024

Data source

Disease registry

Other

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Administrative details

PURI: https://redirect.ema.europa.eu/resource/1111176

Data source ID: 1111176

Name of data source: French National Registry of Rare Diseases (Banque Nationale de Données Maladies Rares)

Data source acronym: BNDMR

Data holder: Assistance Publique - Hôpitaux de Paris (AP-HP)

Data source type: Disease registry
Other

Data source type, other: National rare diseases registry

Main financial support: Funding from public-private partnership
National, regional, or municipal public funding

Care setting: Secondary care – specialist level (ambulatory)

Data source qualification If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.: Yes

Description of the qualification: French Health Authority (HAS)

Data source website: https://www.bndmr.fr/

Contact details

Arnaud Sandrin

Main

analyse.bndmr@aphp.fr

Data source regions and languages

Data source countries: France

Data source languages: English
French

Data source establishment

Data source established: 15/06/2017

Data source time span: First collection: 15/06/2017
The date when data started to be collected or extracted.

Publications

Data source publications