Administrative details

Data source ID

1000000281

Name of data source

The International PNH Interest Group PNH Registry / The IPIG PNH Registry

Data holder

Data source type

Disease registry

Main financial support

Funding from industry or contract research

Care setting

Hospital outpatient care

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Contact details

Data source regions and languages

Data source countries

Argentina
Australia
Austria
Belgium
Canada
China
Denmark
Finland
France
Germany
Greece
Italy
Japan
Korea, Republic of
Netherlands
Norway
Spain
Sweden
Switzerland
Taiwan
Türkiye
United Kingdom
United States

Data source languages

English
Data source establishment

Data source time span

First collection: 10/05/2024
The date when data started to be collected or extracted.

Studies

List of studies that have been conducted using the data source